VoA Foundation Newsletter
October Issue:
About the VoA Foundation
A Bill of Rights for People Living with Alzheimer’s
Bill of Rights Story Spotlight
Alzheimer’s Resources
Get in Touch!
About the VoA Foundation
We are proud to introduce the VoA Foundation, an educational initiative born from Voices of Alzheimer’s. Our organization, led by individuals living with Alzheimer's, is on a mission to transform the landscape of Alzheimer's care and understanding.
Through the VoA Foundation, we aspire to eradicate stigma, champion equality, and craft educational resources that shed light on cutting-edge innovations in care and treatment. Our vision? A world in which individuals grappling with Alzheimer's and other cognitive illnesses can embrace a life filled with well-being and joy.
Bill of Rights for People Living with Alzheimer’s
We are excited to share our Bill of Rights for People Living with Alzheimer’s disease.
At a time when researchers estimate that more than 6.7 million people live with Alzheimer's disease in the United States alone, this charter, drafted by people living with Alzheimer's and care partners, asserts fundamental rights for people living with the condition that directly address the most critical issues in present-day Alzheimer's diagnosis, treatment, and care.
Bill of Rights Story Spotlight
In each newsletter, we highlight the incredible stories and experiences of individuals living with the disease, their family members, or care partners. Over the coming months, we will feature a personal story to underscore a specific right outlined in our Bill of Rights. This month, we are spotlighting VoA Board Member, Jay Reinstein.
Right for People Living with Alzheimer’s Disease:
Quality Care in All Medical Settings
We have the right to receive quality care in all medical settings from professionals trained in interacting with and caring for people living with cognitive impairment.
“Receiving high-quality continued care for health issues beyond Alzheimer’s alleviates stress for both me and my family.”
“I often tell people I’m living well with the diagnosis. While it’s not the diagnosis I would have chosen, I’ve come to terms with it. I’m in a good place with my healthcare, my doctors, and the support around me, which has allowed me to enjoy a fulfilling life.”
“Having a supportive healthcare system in place and knowing that I’ll receive excellent care from my neurologist, rheumatologist, hematologist, and other specialists is invaluable.”
“I urge everyone to have compassion and educate themselves about those living with this disease. It’s disheartening to go to a doctor’s appointment and have them address my wife instead of me. Respect, compassion, and taking the time to engage with patients are essential in all aspects of care, not just for Alzheimer’s, but for all health issues.”
Alzheimer’s Resources
At the VoA Foundation, we are committed to providing valuable resources and support to those affected by Alzheimer's and other cognitive illnesses. We have compiled the best resources from leading Alzheimer’s organizations to provide the most comprehensive expertise for those living with the disease and their loved ones. Our subject areas include:
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Questions? Want to get in touch? Email us at voa-foundation@voicesofad.com.
