VoA Foundation Newsletter
May Issue:
About the VoA Foundation
A Bill of Rights for People Living with Alzheimer’s
Bill of Rights Story Spotlight
Alzheimer’s Resources
Get in Touch!
About the VoA Foundation
We are proud to introduce the VoA Foundation, an educational initiative born from Voices of Alzheimer’s. Our organization, led by individuals living with Alzheimer's, is on a mission to transform the landscape of Alzheimer's care and understanding.
Through the VoA Foundation, we aspire to eradicate stigma, champion equality, and craft educational resources that shed light on cutting-edge innovations in care and treatment. Our vision? A world in which individuals grappling with Alzheimer's and other cognitive illnesses can embrace a life filled with well-being and joy.
Bill of Rights for People Living with Alzheimer’s
We are excited to share our Bill of Rights for People Living with Alzheimer’s disease.
At a time when researchers estimate that more than 6.7 million people live with Alzheimer's disease in the United States alone, this charter, drafted by people living with Alzheimer's and care partners, asserts fundamental rights for people living with the condition that directly address the most critical issues in present-day Alzheimer's diagnosis, treatment, and care.
Bill of Rights Story Spotlight
In each newsletter, we highlight the incredible stories and experiences of individuals living with the disease, their family members, or care partners. Over the coming months, we will feature a personal story to underscore a specific right outlined in our Bill of Rights. This month, we are spotlighting Joe and Jenny Knap.
Right for People Living with Alzheimer’s Disease:
Barrier-Free Participation in Clinical Trials for Alzheimer’s Disease
We have the right to participate in clinical trials without facing unnecessary barriers, and the right to treatments that have undergone rigorous testing in diverse populations.
“We were fortunate to be involved in a clinical trial and especially fortunate to access one easily with no barriers.”
“There were no parts of the experience we dreaded. We felt lucky to be receiving such good care and were committed on a regular basis to doing one of the best things known in the scientific world.”
“Participating in research gave us confidence…. it gave us hope knowing that this could be not only helpful for Jenny but also for other people down the road.”
Alzheimer’s Resources
At the VoA Foundation, we are committed to providing valuable resources and support to those affected by Alzheimer's and other cognitive illnesses. We have compiled the best resources from leading Alzheimer’s organizations to provide the most comprehensive expertise for those living with the disease and their loved ones. Our subject areas include:
Follow Us!
Questions? Want to get in touch? Email us at voa-foundation@voicesofad.com.
