VoA Foundation Newsletter
March Issue:
About the VoA Foundation
A Bill of Rights for People Living with Alzheimer’s
Bill of Rights Story Spotlight
Alzheimer’s Resources
Rebecca Chopp’s New Memoir: “Still Me”
Get in Touch!
About the VoA Foundation
We are proud to introduce the VoA Foundation, an educational initiative born from Voices of Alzheimer’s. Our organization, led by individuals living with Alzheimer's, is on a mission to transform the landscape of Alzheimer's care and understanding.
Through the VoA Foundation, we aspire to eradicate stigma, champion equality, and craft educational resources that shed light on cutting-edge innovations in care and treatment. Our vision? A world in which individuals grappling with Alzheimer's and other cognitive illnesses can embrace a life filled with well-being and joy.
Bill of Rights for People Living with Alzheimer’s
We are excited to share our Bill of Rights for People Living with Alzheimer’s disease.
At a time when researchers estimate that more than 6.7 million people live with Alzheimer's disease in the United States alone, this charter, drafted by people living with Alzheimer's and care partners, asserts fundamental rights for people living with the condition that directly address the most critical issues in present-day Alzheimer's diagnosis, treatment, and care.
Bill of Rights Story Spotlight
In each newsletter, we will feature a personal story highlighting the experiences of individuals living with Alzheimer's, their family members, or care partners, to underscore a specific right outlined in our Bill of Rights. This month, we are spotlighting LuPita Gutierrez-Parker, a VoA Foundation Board Member.
“Getting a PET scan is really important to me”
“When I was able see a neurologist, which took me many months, I asked about receiving a PET scan. They informed me that they did not refer patients for PET scans. When I questioned this, I was told there was no point because it was costly and I’ve already received a diagnosis, and that it wouldn’t do anything. Hearing this felt like a death sentence again.”
“Getting a PET scan is really important to me. I want to better understand what is going on in my brain. I walked out of the neurology appointment feeling hopeless and wanting to give up advocating for myself.”
Right for People Living with Alzheimer’s disease:
Access the Full Range of Screening, Diagnostic, and Treatment Options
We have the right to affordable, expeditious Medicare and other payer coverage for the full range of screening, diagnostic, and treatment options validated and approved by the FDA for Alzheimer’s disease, including but not limited to cognitive screening, diagnostics, genetic counseling, and access to new biologic therapies, whether via infusions or self-injections
Alzheimer’s Resources
At the VoA Foundation, we are committed to providing valuable resources and support to those affected by Alzheimer's and other cognitive illnesses. We have compiled the best resources from leading Alzheimer’s organizations to provide the most comprehensive expertise for those living with the disease and their loved ones. Our subject areas include:
Follow Us!
Questions? Want to get in touch? Email us at voa-foundation@voicesofad.com.
Rebecca Chopp Launches Her New Memoir, “Still Me: Accepting Alzheimer’s Without Loosing Yourself”
Congratulations to VoA Foundation Board Member, Rebecca Chopp, on the launch of her new book, “Still Me: Accepting Alzheimer’s Without Loosing Yourself,” a memoir about her experience of finding joy while navigating the early stages of Alzheimer’s disease.
