VoA Foundation Newsletter


June Issue:

  • About the VoA Foundation

  • A Bill of Rights for People Living with Alzheimer’s

  • Bill of Rights Story Spotlight

  • Alzheimer’s Resources

  • Get in Touch!


About the VoA Foundation

We are proud to introduce the VoA Foundation, an educational initiative born from Voices of Alzheimer’s. Our organization, led by individuals living with Alzheimer's, is on a mission to transform the landscape of Alzheimer's care and understanding.

Through the VoA Foundation, we aspire to eradicate stigma, champion equality, and craft educational resources that shed light on cutting-edge innovations in care and treatment. Our vision? A world in which individuals grappling with Alzheimer's and other cognitive illnesses can embrace a life filled with well-being and joy.

Bill of Rights for People Living with Alzheimer’s

We are excited to share our Bill of Rights for People Living with Alzheimer’s disease.

At a time when researchers estimate that more than 6.7 million people live with Alzheimer's disease in the United States alone, this charter, drafted by people living with Alzheimer's and care partners, asserts fundamental rights for people living with the condition that directly address the most critical issues in present-day Alzheimer's diagnosis, treatment, and care.

Bill of Rights Story Spotlight

In each newsletter, we highlight the incredible stories and experiences of individuals living with the disease, their family members, or care partners. Over the coming months, we will feature a personal story to underscore a specific right outlined in our Bill of Rights. This month, we are spotlighting Doreen Monks.

Right for People Living with Alzheimer’s Disease:
Continuity in Care and Continued Care for All Health Issues

We have a right to continuity in care, and continued care for non-Alzheimer's disease health issues, across all stages of the disease.

“I think oftentimes those living with Alzheimer’s are more likely to be treated differently in our care.”

“The vast majority of people with Alzheimer’s, myself included, have multiple co-morbidities. It is really important to me that all my health conditions are properly managed. I think oftentimes those living with Alzheimer’s are more likely to be treated differently in our care. We may be excluded from the decision making process involving our own care, our concerns may not be taken as seriously, or our other conditions may not receive the attention they deserve simply because we are viewed as just someone who has Alzheimer’s.”

“When I feel that I am being mistreated or not receiving the care I deserve, I try to use that as an opportunity to educate. To help them set aside their judgements and understand that yes, I have Alzheimer’s, but I’m also person who deserves to be actively involved in my care no matter my cognitive ability.”


Alzheimer’s Resources

At the VoA Foundation, we are committed to providing valuable resources and support to those affected by Alzheimer's and other cognitive illnesses. We have compiled the best resources from leading Alzheimer’s organizations to provide the most comprehensive expertise for those living with the disease and their loved ones. Our subject areas include:


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Questions? Want to get in touch? Email us at voa-foundation@voicesofad.com.