VoA Foundation Newsletter

January Issue:

  • Introduction to the VoA Foundation

  • A Bill of Rights for People Living with Alzheimer’s

  • Personal Story Spotlight

  • Alzheimer’s Resources

  • Get in Touch!

Introducing the VoA Foundation

We are proud to introduce the VoA Foundation, an educational initiative born from Voices of Alzheimer’s. Our organization, led by individuals living with Alzheimer's, is on a mission to transform the landscape of Alzheimer's care and understanding.

Through the VoA Foundation, we aspire to eradicate stigma, champion equality, and craft educational resources that shed light on cutting-edge innovations in care and treatment. Our vision? A world in which individuals grappling with Alzheimer's and other cognitive illnesses can embrace a life filled with well-being and joy.

Bill of Rights for People Living with Alzheimer’s

We are excited to share our Bill of Rights for People Living with Alzheimer’s disease.

At a time when researchers estimate that more than 6.7 million people live with Alzheimer's disease in the United States alone, this charter, drafted by people living with Alzheimer's and care partners, asserts fundamental rights for people living with the condition that directly address the most critical issues in present-day Alzheimer's diagnosis, treatment, and care.

Personal Story Spotlight

In each newsletter, we highlight the incredible stories and experiences of individuals living with the disease, their family members, or care partners. Over the coming months, we will feature a personal story to underscore a specific right outlined in our Bill of Rights. This month, we are spotlighting Robert Toia.

“When my wife, Kathy, was first diagnosed with Alzheimer’s, we had about 15 minutes with the neurologist. He just said that it was a progressive disease and that things were going to get worse. I didn’t receive any information on what medications were available or that clinical trials were an option. I had to learn so much on my own.”

“Even the geriatric psychiatrist I brought on for Kathy’s care didn’t give us any information on potential treatments or research opportunities.”

Right for People Living with Alzheimer’s disease:
Complete Information and Shared Decision-Making

We have the right to receive complete information about our diagnosis, treatment, prognosis, access to our medical information, and to be included in decisions about our care to the fullest extent possible.

Alzheimer’s Resources

At the VoA Foundation, we are committed to providing valuable resources and support to those affected by Alzheimer's and other cognitive illnesses. We have compiled the best resources from leading Alzheimer’s organizations to provide the most comprehensive expertise for those living with the disease and their loved ones. Our subject areas include:

Follow Us!

Questions? Want to get in touch? Email us at voa-foundation@voicesofad.com.