VoA Foundation Newsletter
April Issue:
About the VoA Foundation
A Bill of Rights for People Living with Alzheimer’s
Bill of Rights Story Spotlight
Alzheimer’s Resources
Get in Touch!
About the VoA Foundation
We are proud to introduce the VoA Foundation, an educational initiative born from Voices of Alzheimer’s. Our organization, led by individuals living with Alzheimer's, is on a mission to transform the landscape of Alzheimer's care and understanding.
Through the VoA Foundation, we aspire to eradicate stigma, champion equality, and craft educational resources that shed light on cutting-edge innovations in care and treatment. Our vision? A world in which individuals grappling with Alzheimer's and other cognitive illnesses can embrace a life filled with well-being and joy.
Bill of Rights for People Living with Alzheimer’s
We are excited to share our Bill of Rights for People Living with Alzheimer’s disease.
At a time when researchers estimate that more than 6.7 million people live with Alzheimer's disease in the United States alone, this charter, drafted by people living with Alzheimer's and care partners, asserts fundamental rights for people living with the condition that directly address the most critical issues in present-day Alzheimer's diagnosis, treatment, and care.
Bill of Rights Story Spotlight
In each newsletter, we highlight the incredible stories and experiences of individuals living with the disease, their family members, or care partners. Over the coming months, we will feature a personal story to underscore a specific right outlined in our Bill of Rights. This month, we are spotlighting Michele and Doug Hall.
“Talk to your doctor about menopause…”
“Michele was diagnosed at 53 and we had noticed symptoms at least two years before.”
“After ordering an MRI and a PET scan, our neurologist told us that ‘everything looked great.’ He suggested, ‘go back and talk to your doctor about menopause.’”
“This sounded fantastic for about a minute or two, until we realized that it didn’t seem right. Looking back, it was obvious that she had Alzheimer’s based on her symptoms. We think her age definitely influenced her lack of diagnosis.”
Right for People Living with Alzheimer’s Disease:
Fair Access in Treatment and Care for Patients with Early Onset Alzheimer’s
We have the right, in the case of Younger Onset Alzheimer’s, to access the same treatment and care as any person with mild cognitive impairment (MCI) due to Alzheimer’s disease and related cognitive illnesses covered by Medicare.
Alzheimer’s Resources
At the VoA Foundation, we are committed to providing valuable resources and support to those affected by Alzheimer's and other cognitive illnesses. We have compiled the best resources from leading Alzheimer’s organizations to provide the most comprehensive expertise for those living with the disease and their loved ones. Our subject areas include:
Follow Us!
Questions? Want to get in touch? Email us at voa-foundation@voicesofad.com.
